Resources

AARP:

http://www.aarp.org

  • AARP supplies information about caregiving, long-term care and aging, including publications and audio-visual aids for caregivers.

AGIS Network:

http://www.agis.com/ 

  • AGIS.com provides education, support, expert advice, local resources and a vibrant community for caregivers and families of the elderly.

Eldercare Locator National Association of Area Agencies:

http://www.n4a.org or http://www.eldercare.gov

  • Eldercare Locator provides referrals to Area Agencies on Aging via zip code locations. Family caregivers can also find information about many eldercare issues and services available in local communities.

​The National Association of Professional Geriatric Care Website:

http://www.caremanager.org

  • Geriatric care managers (GCMs) are health care professionals, most often social workers, who help families in dealing with the problems and challenges associated with caring for the elderly. This national organization will refer family caregivers to their state chapters, which in turn can provide the names of GCMs in your area. This information is also available online.

U.S. Administration on Aging:

http://www.aoa.gov

  • The Administration on Aging is the official federal agency dedicated to the delivery of supportive home and community-based services to older individuals and their caregivers. The AoA Website has a special section on family caregiving.

Aging with Dignity

http://www.agingwithdignity.org

  • Aging with Dignity publishes the Five Wishes Living Will document, a very user-friendly and comprehensive document that meets legal requirements in 35 states.

Caring Connections

http://www.caringinfo.org

  • Caring Connections provides free brochures on end-of-life topics including advance care planning, caregiving, hospice and palliative care, pain, grief and loss and financial issues. Caring Connections also provides Advanced Directives for all states.

What If Workbook

www.whatifworkbook.com

  • The What If Workbook is a complete compilation of information in the event of a sudden illness or death that survivors will need.

http://hospicedirectory.org/

  • Online consumer database that lists hospices in North America and the U.S. All hospices are listed at no cost. It is a free service that assists families and individuals in locating a hospice within their community quickly. Also provides reliable information about hospice and end-of-life care to consumers.

Hospice Foundation of America 

http://www.hospicefoundation.org

  • The National Hospice Foundation hosts an annual teleconference on issues of bereavement, and has publications on grief and bereavement.

U.S. Department of Health and Human Services National Clearing House for Long-Term Care Information

http://www.longtermcare.gov
e-mail: aoainfo@aoa.hhs.gov 

  • The National Clearinghouse for Long-Term Care Information provides information on planning and financing long-term care including planning for end of life care, and all major types of public and private financing to help cover long-term care costs.

Lotsa Helping Hands

http://www.nfca.lotsahelpinghands.com 

  • Lotsa Helping Hands is a volunteer coordination service for friends, family, colleagues, and neighbors to assist loved ones in need. It’s an easy-to-use, private group calendar, specifically designed for organizing helpers, where everyone can pitch in with meals delivery, rides, and other tasks necessary for life to run smoothly during a crisis.

Video Caregiving

www.videocaregiving.org 

  • A visual education tool for family caregivers of loved ones with Alzheimer’s Disease, strokes or other physical disabilities. The site features exclusive documentary-style videos, created by a team of award-winning film producers, which follow real life people as real life stories and issues unfold. Here caregivers find tools to better understand and deal with their situation, and let them know that they are neither isolated nor alone in their struggle. Great Site!

Home Instead – Caregiverstress

www.caregiverstress.com

  • While family care giving is often very rewarding and a bonding experience, it can also be stressful and cause tension within families. Home Instead Senior Care provides this informative Website to help family caregivers find ways to cope with caregiver stress, in order to make their role more rewarding. A caregiver who takes care of herself or himself – body and mind – will ultimately be a better caregiver to a loved one.

Family Caregiver Alliance (FCA)

http://www.caregiver.org

  • FCA is a public voice for caregivers, illuminating the daily challenges they face, offering them the assistance they so desperately need and deserve, and championing their cause through education, services, research and advocacy.

National Health Council

http://www.nhcouncil.org

Alzheimer’s Association

http://www.alz.org

  • Trial Match (to participate in clinical trials):

http://www.alz.org/research/clinical_trials/find_clinical_trials_trialmatch.asp

Alzheimer’s Foundation of America

www.alzfdn.org    

USAgainstAlzheimer’s
www.usagainstalzheimers.org

American Autoimmune Related Diseases Association
http://www.aarda.org

American Cancer Society
http://www.cancer.org

American Pain Foundation
http://www.painfoundation.org/

American Parkinson Disease Association
www.apdaparkinson.org